Hemophilia of North Carolina | SHARE Charlotte

Hemophilia of North Carolina

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Year Founded:
Local Leader / Exec. Director:
Charlene Cowell
Main Address:
260 Town Hall Drive, Suite A
Morrisville, NC 27560

What We Do

Hemophilia of North Carolina is dedicated to supporting people with bleeding disorders through advocacy, education, promotion of research, and delivery of supportive programs and services. We offer a variety of support groups for families, men, women, and Latinos, as well as other services including a strong patient advocacy program, financial assistance, scholarships, patient education, informational packets and mailings, representation at nursing and other conferences of interest to people affected by bleeding disorders, an Annual Meeting, and a quarterly newsletter.

Hemophilia, von Willebrand Disease, and other factor and platelet deficiencies occur when someone does not properly form a clot while bleeding. Clotting happens when blood cells (platelets) and proteins (clotting factors) work together to form a clot (called coagulation). In people with bleeding disorders, coagulation does not work correctly, either from platelets that are missing or not working correctly, or clotting factors that are absent from the blood. People with hemophilia can suffer debilitating bleeding into joints and muscles causing severe pain and damage to the joints. People with more serious cases of hemophilia and von Willebrand Disease infuse the missing factor several times a week to promote clotting.

Through education and support, we hope to help people avoid debilitating complications and live longer, and lead more active and healthier lives.

Interesting Info

We currently support over 850 member families.
Hemophilia affects mostly males (1 in 5,000 male births) but may affect females as well. Von Willebrand Disease is more common affecting 1% of the population.
To raise awareness and help people to live their live to their full potential.

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Volunteer Opportunities

Board Member
Repeats every day until Thu Oct 01 2020.
Sunday, February 23, 2020 (All day)
Read more »
Committee Member
Repeats every day until Thu Oct 01 2020.
Sunday, February 23, 2020 (All day)
Read more »
Family Festival & Walk Event Volunteer Saturday, April 18, 2020 - 7:30am Read more »

Upcoming Events

Family Festival & Walk for Bleeding Disorders April 18, 2020 -
9:00am to 12:00pm
Read more »

Photos and Videos

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