What We Do
Hemophilia of North Carolina is dedicated to supporting people with bleeding disorders through advocacy, education, promotion of research, and delivery of supportive programs and services. We offer a variety of support groups for families, men, women, and Latinos, as well as other services including a strong patient advocacy program, financial assistance, scholarships, patient education, informational packets and mailings, representation at nursing and other conferences of interest to people affected by bleeding disorders, an Annual Meeting, and a quarterly newsletter.
Hemophilia, von Willebrand Disease, and other factor and platelet deficiencies occur when someone does not properly form a clot while bleeding. Clotting happens when blood cells (platelets) and proteins (clotting factors) work together to form a clot (called coagulation). In people with bleeding disorders, coagulation does not work correctly, either from platelets that are missing or not working correctly, or clotting factors that are absent from the blood. People with hemophilia can suffer debilitating bleeding into joints and muscles causing severe pain and damage to the joints. People with more serious cases of hemophilia and von Willebrand Disease infuse the missing factor several times a week to promote clotting.
Through education and support, we hope to help people avoid debilitating complications and live longer, and lead more active and healthier lives.