Hemophilia of North Carolina | SHARE Charlotte

Hemophilia of North Carolina

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Year Founded:
1977
Local Leader / Exec. Director:
Charlene Cowell
Main Address:
260 Town Hall Drive, Suite A
Morrisville, NC 27560

What We Do

Hemophilia of North Carolina is dedicated to supporting people with bleeding disorders through advocacy, education, promotion of research, and delivery of supportive programs and services. We offer a variety of support groups for families, men, women, and Latinos, as well as other services including a strong patient advocacy program, financial assistance, scholarships, patient education, and a quarterly newsletter.

Hemophilia, von Willebrand Disease, and other factor and platelet deficiencies occur when someone does not properly form a clot while bleeding. Clotting happens when blood cells (platelets) and proteins (clotting factors) work together to form a clot (called coagulation). In people with bleeding disorders, coagulation does not work correctly, either from platelets that are missing or not working correctly, or clotting factors that are absent from the blood. People with hemophilia can suffer debilitating bleeding into joints and muscles causing severe pain and damage to the joints. People with more serious cases of hemophilia and von Willebrand Disease infuse the missing factor several times a week to promote clotting.

Through education and support, we hope to help people avoid debilitating complications and live longer, and lead more active and healthier lives.

IMPACT OF COVID-19 - SPECIFIC NEEDS:

How We Are Impacted:
It is still not known what the long term effects of COVID-19 will be on the Hemophilia of North Carolina community. However, due to the postponement of our Family Festival & Walk fundraiser, we are at risk of losing 1/3 of our operating budget

How You Can Help:
Any financial donations will help us to keep open our financial assistance program which includes access to a MedicAlert ID, emergency financial assistance, and travel assistance for medical appointments. The emergency financial assistance provides up to $500 for families in need related to their bleeding disorder. Medications for bleeding disorders are expensive. If people are out of work due to COVID-19 and unable to receive a paycheck, they will be at risk of not being able to access medication, pay bills, etc.

$35 will provide a MedicAlert ID to a patient in need of this lifesaving resource.
$50 will pay transportation costs for a patient to get to a medical appointment to receive necessary treatments for their bleeding disorder.
$150 can pay for a family’s electric bill for one month, necessary as a basic need but also so medications can be kept refrigerated.
$250 is a monthly car payment for a person who may have missed work due to a complication of their bleeding disorder or because they are a caregiver

Interesting Info

We currently support over 850 member families.
Hemophilia affects mostly males (1 in 5,000 male births) but may affect females as well. Von Willebrand Disease is more common affecting 1% of the population.
To raise awareness and help people to live their live to their full potential.

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Volunteer Opportunities

We do not have any volunteer needs at this time, but others do! Please search all opportunities now.

Upcoming Events

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