United States
The Multiple Myeloma Research Foundation (MMRF) was established in 1998 by Kathy Giusti, a multiple myeloma patient, and her twin sister Karen Andrews. As a 501(c)(3) nonprofit organization, the MMRF has created the business model around cancer-from data to analytics to the clinic. The MMRF identifies barriers and then finds the solutions to overcome them, bringing in the best partners and aligning incentives in the industry to drive better outcomes for patients. Since its inception, the organization has collected thousands of samples and tissues, opened nearly 100 trials, helped bring 11 FDA-approved therapies to market, and built CoMMpass, the single largest genomic dataset for any cancer. Today, the MMRF is building on its legacy in genomics and is expanding into immune-oncology, as the combination of these two fields will be critical to making precision medicine possible for all patients. The MMRF has raised nearly $500 million and directs nearly 90% of the total funds to research and related programs.
