#SpotlightOnCLT: Hemophilia of North Carolina Needs Your Support | SHARE Charlotte

Stories
Some call it stories. Others call it a blog. But here you'll find nuggets of goodness to use and -- you guessed it -- SHARE!

#SpotlightOnCLT: Hemophilia of North Carolina Needs Your Support

Written by Eden Estabrook    on February 25, 2019    in


Everyone needs support sometimes. No matter the challenge, banding together with other people who can encourage you through hard times is vital.

Medical struggles are no different. A community of people who understand and can provide support and advice is a key part of maintaining your sanity and morale through the ups and downs the medical roller coaster can send you on. This is especially true for people with bleeding disorders.

Hemophilia of North Carolina is the only nonprofit organization in the state that supports people affected by bleeding disorders, including hemophilia, von Willebrand disease, and other rare factor deficiencies and inherited platelet disorders. It’s estimated that 80,000 people in North Carolina have a bleeding disorder, but many may not be aware of it until major complications arise. Von Willebrand disease affects 1-2% of the population, and hemophilia affects 1 in 10,000 births. Hemophilia of North Carolina is eagerly awaiting March and with it, the kick off of “Bleeding Disorders Awareness Month” to help bring awareness to the realities of bleeding disorders with which thousands of affected individuals endure on a regular basis. Resources, and more importantly, a supportive community of people, is available through this awesome organization. But they need your help.

The ask is simple. Join Hemophilia of North Carolina in bringing awareness of this issue to your local community. By raising awareness of bleeding disorders, Hemophilia of North Carolina hopes that people who may be suffering can reach out for resources or information that can be used to help accurately identify a bleeding disorder. As bleeding disorders are rare, some medical providers struggle to properly diagnose due to unfamiliarity with the symptoms. By being able to provide people with information, the amount of time it may take someone to be diagnosed can be cut down, preventing unnecessary pain and suffering from lack of treatment.

In addition to information, Hemophilia of North Carolina also offers supportive and educational groups that allow members to connect with other people affected by bleeding disorders in North Carolina. They strongly believe that support is important for the emotional well-being of people affected by a bleeding disorder. It provides a community of people who can relate to each other and help each other in their time of need. There are people in Charlotte, and throughout North Carolina, who are living with bleeding disorders and Hemophilia of North Carolina hopes that by continuing to raise awareness of this issue and the resources available through their organization, people will connect with them and discover all the ways that they can be supported through this challenge.  

What are you waiting for? Something as simple as following Hemophilia of North Carolina on Facebook, Twitter, or Instagram can bring you one easy step closer to helping another person find the caring community they need. Like. Follow. SHARE. Let people with bleeding disorders know that they are not alone.

If you would like to make a financial donations to Hemophilia of North Carolina in addition to helping spread awareness for this incredible organization, click here.